Wellness

What Does Gluten Intolerance Feel Like? 13 Symptoms to Watch Out For

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Hiya Gorgeous,

You probably know at least one person who’s gone gluten-free. They may have been diagnosed with celiac disease or self-reported gluten intolerance. Perhaps they just feel healthier, think more clearly, and have better digestion without gluten on their plate.

Maybe you’ve even removed it from your diet (or at least thought about it!). Regardless, you can’t turn around in a grocery store or browse most restaurant menus without seeing the gluten-free label.

Despite the incidence of celiac disease remaining flat, the number of people following a gluten-free diet has more than tripled since 2009 (reference). Among those eating gluten-free, 72% are classified as “PWAGs” (people without celiac who avoid gluten).

Why are so many people going gluten-free if they don’t have celiac disease? Well, there are several ways gluten can wreak havoc on your health.

We’ll cover 13 of the most common symptoms of gluten intolerance so you can start figuring out whether or not a gluten-free diet could be for you. Then we’re gonna break down the differences between celiac disease, wheat allergy, gluten intolerance, and gluten sensitivity.

The 13 Symptoms of Gluten Intolerance

So if you don’t have celiac disease—and you’re not allergic to wheat but you still feel crappy after eating—how can you tell whether or not gluten is the culprit? Because there are no tests for gluten sensitivity or intolerance, it’s not always easy!

But if you pay close attention to how you feel when you eat foods that contain gluten vs. foods that don’t, you may notice a pattern.

Start by watching out for these common signs of gluten intolerance:

#1: Upset Stomach, Bloating, Heartburn, and “Celiac Burping”

People with gluten intolerance or sensitivity are often very burpy and bloated, get heartburn, and feel stomach pain or discomfort after eating. They may feel like food is stuck and isn’t digesting properly, and may even have productive burps (aka regurgitation) soon after eating.

Do you feel like a Pepto Bismol commercial yet?

#2: Diarrhea, Constipation, and Abdominal Pain

Folks who are sensitive to gluten might experience digestive symptoms such as frequent diarrhea or constipation (or both!) after consuming it. These symptoms are very similar to those experienced by people with Irritable Bowel Syndrome (IBS).

People who have especially sensitive digestive systems often experience increased intestinal permeability when they eat gluten. This means that harmful bacteria and toxins pass through the intestinal lining into the rest of the body (you may have heard this referred to as leaky gut syndrome).

People with leaky gut often eliminate gluten to help heal the lining of their intestinal tract (study). Healing a leaky gut also often involves avoiding yeast, dairy, sugar and alcohol, managing stress, and eating a nutrient-dense diet.

 

#3: Arm and Leg Numbness

Arm and leg numbness—referred to in the medical field as neuropathy—can be a surprising symptom of gluten intolerance. This is also commonly seen in people who are diabetic or have B12 deficiencies.

#4: Iron-Deficiency Anemia

Did you know that iron deficiency anemia is the most common nutrient deficiency? Approximately 10 million people in the United States are deficient in iron (source). People who have an iron deficiency have symptoms like fatigue, shortness of breath, dizziness, headaches, and overall weakness.

#5: Skin Reactions

Gluten intolerant individuals can also struggle with skin conditions, such as eczema, psoriasis, and atopic dermatitis. Dermatitis herpetiformis is a skin condition characterized by blistering and most commonly associated with celiac disease.

#6: Fatigue

Another common symptom of gluten-sensitive individuals is fatigue, a feeling of persistent tiredness that impacts daily functioning. However, this can be related to numerous other autoimmune diseases as well.

#7: Migraines

Do you get headaches or migraines frequently without a clear cause? Migraines are yet another symptom that can overlap with other disorders.

#8: Autoimmune Disorders

Unfortunately, research has found that having one autoimmune disorder can make you prone to other autoimmune diseases (source). People with celiac disease are also commonly diagnosed with autoimmune liver diseases, autoimmune thyroid disease, inflammatory bowel disease, and even type I diabetes. Conversely, people with autoimmune thyroid disorders makes celiac disease more likely.

#9: Stunted Growth in Kids

One of the major health concerns is seen in children who have a gluten allergy. Celiac disease leads to poor nutrient absorption, which can cause unintentional weight loss and a failure to thrive. If you notice any symptoms of gluten intolerance in a child, seek professional medical help immediately!

#10: Weight Loss

If you experience unintended weight loss, it can be a sign of poor nutrient absorption. If it’s accompanied by other digestive issues, consider getting tested for a gluten allergy.

#11: Brain Fog/Mental Fatigue

Brain fog is characterized by an inability to focus, sluggish thinking, forgetfulness, confusion, and memory issues.

#12: Emotional and Depressive Disorders (Depression and Anxiety)

The way gluten intolerance can worsen anxiety and depression is connected to its impact on the gut microbiome. Research has shown that gluten intolerance can destroy beneficial bacteria in the gut and wreak havoc on the digestive system, in turn impacting your mood.

#13: Joint and muscle pain

Feeling a little bit of pain everywhere? People who are gluten sensitive often experience widespread pain. These symptoms should diminish for sensitive guys and gals after going gluten-free for a few days.

Whether you’re dealing with any of the above symptoms or not, if you’re ready to start feeling better, use our handy wellness tracker to get back on track!

What is Gluten?

Now that we’ve established common symptoms to keep an eye out for, let’s backtrack and take a deeper dive into other need-to-know terminology.

Gluten, Latin for “glue,” is a protein found in wheat, barley, rye, triticale, malt, brewer’s yeast, wheat starch, and wheat derivatives like wheat berries, durum, emmer, semolina, spelt, and farina.

What is Gluten Intolerance (Non-Celiac Gluten Sensitivity)?

Non-Celiac Gluten Sensitivity (NCGS) is also commonly referred to as gluten sensitivity or gluten intolerance. If you have a gluten intolerance, you’ll feel digestive discomfort after you eat gluten or wheat because you’re sensitive to the stuff. You’ll also exhibit some of the same symptoms.

There are no medical tests for non-celiac gluten sensitivity (NCGS) and the complications aren’t yet fully understood. The majority of people who avoid gluten fall into this category.

The major difference between someone who has a gluten sensitivity and someone who is gluten intolerant is in the severity of the symptoms. It may take someone who is gluten intolerant several weeks to feel relief from symptoms once they remove gluten from their diets.

However, people with gluten sensitivity may see improvements almost immediately.

Both gluten sensitivity and intolerance aren’t well defined by the medical community. Eliminating gluten and documenting the results is the only “test” available. Researchers are currently trying to determine if gluten exposure for those with sensitivity or intolerance can lead to any long-term complications like damage to the intestinal tract or issues resulting from inflammation.

What Causes Gluten Intolerance?

No one knows what causes celiac disease and gluten intolerance. Research is ongoing to determine a genetic component and look at environmental factors.

What’s the Difference between Gluten Intolerance and a Wheat Allergy?

A wheat allergy is a disorder in which the immune system treats gluten proteins in wheat as foreign invaders and releases antibodies to defend against them. Reactions range from anaphylaxis (when your throat swells up and you can’t breathe—EpiPen needed!) to asthma when wheat is consumed. Other common symptoms include.

  • Chronic urticaria (skin rashes like hives)
  • Digestive issues (stomach cramps, nausea, vomiting, diarrhea)
  • Nasal congestion (more commonly associated with baker’s asthma)

Docs usually use skin prick tests to diagnose wheat allergies, which involve pricking wheat extracts into the skin’s surface (usually on the forearm) and observing the reaction. Blood tests looking for wheat-specific antibodies are also an option.

Although gluten is in all wheat products, people with wheat allergies can consume wheat-free foods that contain gluten (such as barley, rye, malt, and some oats). Like celiac disease, wheat allergy is a serious condition that requires strict avoidance of wheat-containing foods.

How is Gluten Intolerance Diagnosed?

If you think you or your child have undiagnosed celiac disease, you can schedule an appointment with a specialist. Doctors test for celiac disease by doing a blood panel that checks for celiac antibodies the body produces when it detects gluten.

Because of this, it’s important for people being tested for celiac disease to continue consuming gluten during the testing period. When the blood panel finds celiac antibodies, the physician often recommends doing a biopsy of the small intestine to confirm the diagnosis.

Those with celiac disease must strictly avoid all gluten to live symptom-free. Celiac is not technically a food allergy, but it’s often referred to as such to emphasize how important it is for celiac disease patients to steer clear of gluten.

However, if you are not diagnosed with Celiac Disease, there is no diagnostic test to determine if you gave a gluten intolerance or sensitivity at this time.

How is a Gluten Intolerance Different from Celiac Disease?

Celiac disease is an inherited autoimmune disease and the most severe form of gluten intolerance. People who have it have adverse reactions when they consume gluten. Their bodies create antibodies that destroy villi, which are finger-like projections in the small intestine that assist with nutrient absorption, damaging the digestive tract.

People with celiac disease experience inflammation after eating gluten, which can lead to abdominal pain and the significant digestive discomfort commonly associated with someone who is gluten intolerant. They also struggle with nutritional deficiencies.

Celiac disease is often genetic and can run in families. If you or a loved one has symptoms—or experiences a risk factor such as diabetes—get tested.

How to Treat a Gluten Intolerance

If you’re regularly experiencing any of the widespread symptoms listed above—and have not been diagnosed with celiac disease—try eliminating gluten from your diet for at least 3 weeks. You should start feeling better within the first week.

Once you’ve cut gluten from your diet for at least 3 weeks, slowly integrate it back into your life and evaluate how you feel after 3 days. If everything else in your diet has stayed the same, you should get a pretty clear feeling as to whether or not gluten is the trigger.

One thing to keep in mind: New research indicates that common upper and lower GI gluten sensitivity symptoms could also be connected to a group of poorly digested carbohydrates called FODMAPs (fermentable oligo-, di-, monosaccharides, and polyols) such as fruits, certain veggies, wheat, rye, barley, beans, lentils and some nuts (study).

If giving up gluten doesn’t help improve your digestive symptoms, you may want to consider working with an integrative nutritionist to eliminate FODMAPs temporarily to help your system heal.

Ready to Reduce Gluten in Your Diet?

If you decide to try a gluten-free diet—don’t skimp on whole grains—but do avoid eating foods containing gluten. Rely on gluten-free whole grains like millet, quinoa, amaranth, buckwheat, and teff.

Also, avoid the overly processed gluten-free snack foods and desserts. They’re often packed with added sugars, preservatives, and other inflammatory ingredients. Check out this blog post to learn more about the pros and cons of a gluten-free diet, and tips for doing it the healthy way.

This is about finding a diet that works for you, not anyone else! I encourage you to be your own health detective. Do your research, and work with integrative docs and practitioners who take a holistic approach to your well-being. If some light bulbs went off while reading this, I hope you’ll dig deeper and seek out guidance and testing, if needed. Your exploration will bring you greater well-being.

Your turn: Have you overcome health challenges with gluten or do you have questions I could cover in another blog? Share your experiences, questions, and resources in the comments so that we can swap tips and insights!

Peace & exploration,

 
Add a comment
  1. Gina says:

    Hello Kris,

    Thank you for the informative post. I read recently that the issue with gluten in our food source developed over the last 50 years. Not only from the over-processing and removing the “good stuff,” but because big-ag modified wheat from the long wheat shafts of the old days that took longer to grow and held less gluten, to a shorter wheat shaft for faster growth/faster crops that also produce higher levels of gluten. At the gluten levels we have now plus so much processed grains it’s no wonder we (US) is having these problems (according to this functional doctor’s article). My understanding is that gluten products from other countries that have banned GMOs and pesticides that also accelerate growth aren’t having the gluten-intolerance levels we do here.

    Have you heard anything about this? It seems frustrating that something else in our food supply that was so healthy for millennia is now unable to be eaten by so many.

    Thank you!

    • Jennifer says:

      Hi Gina! This is Jennifer from Team Crazy Sexy. We’re glad you liked Kris’s post! 🙂 Someone else brought up a similar point and got the following response from Jen, our Nutritional Director. Jen said, “The GMO food topic is a very interesting one and something that researchers are looking into, especially with the rise in food allergies and auto-immune diseases. However, wheat is actually not genetically modified — at least not the wheat that’s available commercially. However, GMO corn and soy may be cause for concern with digestive and other health issues, which is why we always emphasize non-GMO organic corn and soy foods. It’s preferable for the environment and our health to always choose organic foods as well. I suspect there will be lots of new research coming out in the not-too-distant future on GMOs, so we will keep our ears and eyes out and keep you posted! Hope that helps! xo – Jen”

  2. Bev Gunn says:

    I decided to go gluten free after discovering that I always felt worse after eating something made with flour. Since then, my stomach problems have decreased significantly and my bloating is gone! Not celiac and don’t want to be!

  3. What a great post!
    I tried gluten free before but it didn’t work. After reading this, I think that I should go for it again though.
    My Aunt would break out when she ate gluten. I’ve heard stories over the years but don’t break out so never thought it was an issue for me.
    Do you know if these allergies, etc. may get worse as a person ages? I ask because, as I’ve aged, I’ve noticed skin rashes off and on. My hands and feet also tend to feel funny at times. I’m vegan and did notice a difference in my skin when I cut out dairy and went gluten-free for a while. I guess that should have told me but I’m going to go off and on as a test again. 🙂 Anyway, thanks!
    Namaste

    • Jen Reilly, RD says:

      Hi Angela! I’m the nutrition director here with Kris so I’ll chime in. Things can certainly build up in your body over time although sensitivities can both increase or decrease as you age. You can certainly try to eliminate gluten again and see if the rashes diminish. You may also want to consider supplementing with Omega-3 fats (flax, chia, etc.) as they can make a big difference in the hydration of your skin and the health of your skin in general. In fact, check out our skin health blog here for more info: https://kriscarr.com/blog/how-to-get-healthy-skin-foods/

      Hope that helps! xo – Jen

  4. Carol says:

    Thanks Kris for clarifying the differences.

    While I note symptoms of insensitivity to gluten with wheat products in the USA, I wonder why I can eat bread and pasta in Europe and be symptom free? Is the something about GMO products?

    • Jen Reilly, RD says:

      Hi Carol! I’ve heard similar stories over and over! Wheat is actually not genetically modified here in the US, so it’s a bit of a mystery. It could be related to pesticides, processing or additives, or simply the fact that you’re less stressed while eating bread in Europe! 🙂 Let us know if you see any big discrepancies as you compare ingredients in the different ingredient lists. We’d like to solve this mystery too! – Jen (Nutrition Director at KrisCarr.com)

  5. Michelle says:

    I went gluten free, felt more energy and generally better. I also lost 20 pounds! I didn’t even try. I was tested for celiac but was not..I rarely now eat gluten and feel healthier!

  6. Elizabeth says:

    Thank you so much for addressing this issue! I was diagnosed with celiac 6 years ago after having symptoms for 5 years. I was so grateful for the diagnosis, which cleared up so many symptoms (stomach pain / cramps, digestion troubles, joint pain). I haven’t ever had gluten since. For a few years, that was all I needed to feel good, and then new symptoms came up (a contact rash if I touched gluten, and other symptoms that I haven’t figured out). It’s a process. I’m really grateful for the opportunity to learn from others and find ways to heal. It gets a little exhausting to always work on health, but it’s far better than the alternative. Sending everyone peace and hopes for healing!

    One “product” that’s been a treat for me is a monthly subscription to SouperGirl. Their soups are made in a GF facility. Their delicious summer gazpacho has just come into season. My husband “doesn’t like gazpacho” but he loves theirs. The soup that makes my body feel best isn’t fancy but really really makes me feel good, the Lentils and Greens. With celiac, I never eat out to avoid cross-contamination. It’s a lovely treat to have delicious, plant-based, oil-free soups (often made with organic and/or local ingredients) delivered. I don’t work with or know the folks at SouperGirl personally. I’m sharing just because it’s so nice to have some healthy, delicious, TLC!

    Wishing everyone the best on this health journey! 🙂

    • kris says:

      Thanks for sharing your story, Elizabeth. So glad to hear you’ve found what works for you. I’ll check out SouperGirl! xo!

  7. Jan Stricos says:

    I have Chronic Migraines and Gluten sensitivity. Is this the cause of my migraines? I have been Vegetarian for over twenty years. Maybe I should follow the Low FODMAP Diet. Please help me Kris!!

    • Jen Reilly, RD says:

      Hi Jan! I’m the nutrition director here with Kris so I’ll jump in. Migraines are complicated. If you’re not finding relief with gluten avoidance, you may want to try and skip fermented foods and also FODMAPs for a period of 3-4 weeks. Alcohol, caffeine, tyramine-rich foods, sleep (or lack of), hormonal cycles, stress and weather can all be to blame too. If you’ve never worked with an integrative doc to resolve your migraines, you may want to consider it. Hope you find some relief soon! xo – Jen

  8. Barbara Allington says:

    Your advice is good … to a point. You fail to stress the importance of organic and non-GMO. I’ve read a great deal of research pointing to the toxins in conventionally grown and processed wheat, as well as the lack of research supporting safety of GMOs, as potential reasons many have issues with wheat.

    • Jen Reilly, RD says:

      Hi Barbara! I’m the nutrition director here at Crazy Sexy Wellness so I’ll chime in for Kris. The GMO food topic is a very interesting one and something that researchers are looking into, especially with the rise in food allergies and auto-immune diseases. However, wheat is actually not genetically modified — at least not the wheat that’s available commercially. However, GMO corn and soy may be cause for concern with digestive and other health issues, which is why we always emphasize non-GMO organic corn and soy foods. It’s preferable for the environment and our health to always choose organic foods as well. I suspect there will be lots of new research coming out in the not-too-distant future on GMOs, so we will keep our ears and eyes out and keep you posted! Hope that helps! xo – Jen

  9. Ellen McFarlain says:

    Rash!! I had a red rash (not redhead)

  10. Ellen McFarlain says:

    I don’t eat pizza regularly, but had a few slices the other night at dinner. By the time I went to bed my calves and feet had a red redhead on them and itched like crazy! I can eat just about anything, but I’m wondering if I have a gluten sensitivity because of what happened after I ate the pizza (and the crust)!! Any advice?

  11. Delta says:

    Wheat causes inflammation anyway.. I wouldn’t recommend anyone eat it, especially whole wheat. It’s not the same wheat our grandparents ate.

    This is a good article nonetheless.

  12. Muzammil says:

    I don’t know if i am gluten allergic or not but whenever i eat slice bread i just don’t feel good. I think slice has great amount of gluten.So i have a question should i quit eating it?

  13. F. Weiss says:

    I’ve been having terrible GI symptoms while on the gluten challenge, as my doctor recommended. Haven’t been so sick since I eliminated gluten from my diet. Blood work was done today & regardless of the results……..no more gluten for me!

  14. zammie says:

    After I eat wheat products..(I quit today, for good!)…I get so congested that I feel like I need to go to the hospital for a breathing treatment. It fades away an hour or two later, like nothing happened. I’ve been stymied by this reaction for a very long time, in addition to my sinuses hurting, and my fact feeling swollen. I also get indigestion, but have you heard from others about getting congestion and trouble breathing? thanks

    • Jen Reilly, RD says:

      Hi Zammie! I’m the nutrition director here at KrisCarr.com, so I’ll chime in. Because gluten is inflammatory, it’s entirely possible to feel congested the same way dairy products make some folks feel mucousy and phlemmy after consuming them. It doesn’t sound like your reaction is life-threatening, but certainly annoying! The only way to really test this would be to avoid gluten and wheat completely for 3 weeks and then add ONE serving back in and see how you feel. Keep a log and see if you feel congested any other time throughout those 3 weeks while avoiding gluten. Hope you get some confirmation, and luckily, if it is indeed gluten or wheat causing you issues, there are so many wonderfully healthy gluten-free grains out there! – xo Jen

  15. huda says:

    Too much

  16. James says:

    I used to just grab a couple packs of ramen when I was hungry, cause they fill you up and a quick, ended up with chronic diarrhea. I’d eat normally for dinner most days but always knocked out the void with ramen through the day. It was a time thing. I went on vacation and during the vacation I cooked normally for all meals, ate at regular restaurants and didn’t have any junk food. After that one week of no ramen no McDonald’s no junk food. My chronic diarrhea went away. My energy went back to normal my sleeping habits even leveled off. As soon as I went back to work and my time became more reserved again added the ramen just to fill up quick. Within days the chronic diarrhea came back. I stopped the ramen as soon as I noticed this. And low and behold the diarrhea went away again. So yes dropping glutten from your diet can significantly improve your overall health.

  17. Rosemary Draayer says:

    I just had blood work done and was told I am sensitive to wheat and cows milk. What foods do I need to avoid?

  18. John says:

    Thanks for this article Kris, I have had autoimmune issues for years , psoriasis really badly arthritis, then last year I went to the dr with weight loss anyhow it turned out I was hyperthyroid , I didn’t feel unwell just skinny ! Been on meds and ok now or so I thought , anyhow I had a pasta meal out with friends and next morning I couldn’t move my skinny belly looked like a mountain and the pressure on my bladder made me pee all day long I felt awful ! So I researched over and over and decided to cut the wheat – I felt shocking for a week after cutting it out flu like symptoms headache further bloating but a week on I was on top of the world ! My this stuff is toxic I will never digest it again I’m so conscious and read every label now , just makes me wonder how many years I’ve gone feeling “just ok” or awful” not knowing it’s that damn stuff – thanks again John

  19. Ginger says:

    Very informative.

    I first intestinal flare ups after we’re after a red glass of wine. Up to then no alcohol issues and drinking was infrequent but I was fine. Then after eating eggs and whole wheat bread nauseated
    and needing to vomit.

    I do not experience burping belching or much gas either.

    But I never had any eating issues but I now avoid onions too.

    If this is as bad as it gets I should probably consider me generally healthy.

  20. Charlene Dionne says:

    Hi, I’m Charlene,
    when I eat Gluten I feel bloated, My lower Stomach feels like sharp stabbing pain My fingers and hands Itch Have to go bathroom and more. I never new where. We have a Doctor here in Nursing Home I tolled her my symptoms and she said try Gluten Free. I got aces and pain but that goes with my Muscular Dystrophy. I also got type 2 diabetes Acid reflex and should not have cheese.

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