Kris Carr

Kris Carr

Wellness

What Does Gluten Intolerance Feel Like? 13 Symptoms to Watch Out For

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Hiya Gorgeous,

You probably know at least one person who’s gone gluten-free. They may have been diagnosed with celiac disease or self-reported gluten intolerance. Perhaps they just feel healthier, think more clearly, and have better digestion without gluten on their plate.

Maybe you’ve even removed it from your diet (or at least thought about it!). Regardless, you can’t turn around in a grocery store or browse most restaurant menus without seeing the gluten-free label.

Despite the incidence of celiac disease remaining flat, the number of people following a gluten-free diet has more than tripled since 2009 (reference). Among those eating gluten-free, 72% are classified as “PWAGs” (people without celiac who avoid gluten).

Why are so many people going gluten-free if they don’t have celiac disease? Well, there are several ways gluten can wreak havoc on your health.

We’ll cover 13 of the most common symptoms of gluten intolerance so you can start figuring out whether or not a gluten-free diet could be for you. Then we’re gonna break down the differences between celiac disease, wheat allergy, gluten intolerance, and gluten sensitivity.

The 13 Symptoms of Gluten Intolerance

So if you don’t have celiac disease—and you’re not allergic to wheat but you still feel crappy after eating—how can you tell whether or not gluten is the culprit? Because there are no tests for gluten sensitivity or intolerance, it’s not always easy!

But if you pay close attention to how you feel when you eat foods that contain gluten vs. foods that don’t, you may notice a pattern.

Start by watching out for these common signs of gluten intolerance:

#1: Upset Stomach, Bloating, Heartburn, and “Celiac Burping”

People with gluten intolerance or sensitivity are often very burpy and bloated, get heartburn, and feel stomach pain or discomfort after eating. They may feel like food is stuck and isn’t digesting properly, and may even have productive burps (aka regurgitation) soon after eating.

Do you feel like a Pepto Bismol commercial yet?

#2: Diarrhea, Constipation, and Abdominal Pain

Folks who are sensitive to gluten might experience digestive symptoms such as frequent diarrhea or constipation (or both!) after consuming it. These symptoms are very similar to those experienced by people with Irritable Bowel Syndrome (IBS).

People who have especially sensitive digestive systems often experience increased intestinal permeability when they eat gluten. This means that harmful bacteria and toxins pass through the intestinal lining into the rest of the body (you may have heard this referred to as leaky gut syndrome).

People with leaky gut often eliminate gluten to help heal the lining of their intestinal tract (study). Healing a leaky gut also often involves avoiding yeast, dairy, sugar and alcohol, managing stress, and eating a nutrient-dense diet.

 

#3: Arm and Leg Numbness

Arm and leg numbness—referred to in the medical field as neuropathy—can be a surprising symptom of gluten intolerance. This is also commonly seen in people who are diabetic or have B12 deficiencies.

#4: Iron-Deficiency Anemia

Did you know that iron deficiency anemia is the most common nutrient deficiency? Approximately 10 million people in the United States are deficient in iron (source). People who have an iron deficiency have symptoms like fatigue, shortness of breath, dizziness, headaches, and overall weakness.

#5: Skin Reactions

Gluten intolerant individuals can also struggle with skin conditions, such as eczema, psoriasis, and atopic dermatitis. Dermatitis herpetiformis is a skin condition characterized by blistering and most commonly associated with celiac disease.

#6: Fatigue

Another common symptom of gluten-sensitive individuals is fatigue, a feeling of persistent tiredness that impacts daily functioning. However, this can be related to numerous other autoimmune diseases as well.

#7: Migraines

Do you get headaches or migraines frequently without a clear cause? Migraines are yet another symptom that can overlap with other disorders.

#8: Autoimmune Disorders

Unfortunately, research has found that having one autoimmune disorder can make you prone to other autoimmune diseases (source). People with celiac disease are also commonly diagnosed with autoimmune liver diseases, autoimmune thyroid disease, inflammatory bowel disease, and even type I diabetes. Conversely, people with autoimmune thyroid disorders makes celiac disease more likely.

#9: Stunted Growth in Kids

One of the major health concerns is seen in children who have a gluten allergy. Celiac disease leads to poor nutrient absorption, which can cause unintentional weight loss and a failure to thrive. If you notice any symptoms of gluten intolerance in a child, seek professional medical help immediately!

#10: Weight Loss

If you experience unintended weight loss, it can be a sign of poor nutrient absorption. If it’s accompanied by other digestive issues, consider getting tested for a gluten allergy.

#11: Brain Fog/Mental Fatigue

Brain fog is characterized by an inability to focus, sluggish thinking, forgetfulness, confusion, and memory issues.

#12: Emotional and Depressive Disorders (Depression and Anxiety)

The way gluten intolerance can worsen anxiety and depression is connected to its impact on the gut microbiome. Research has shown that gluten intolerance can destroy beneficial bacteria in the gut and wreak havoc on the digestive system, in turn impacting your mood.

#13: Joint and muscle pain

Feeling a little bit of pain everywhere? People who are gluten sensitive often experience widespread pain. These symptoms should diminish for sensitive guys and gals after going gluten-free for a few days.

Whether you’re dealing with any of the above symptoms or not, if you’re ready to start feeling better, use our handy wellness tracker to get back on track!

What is Gluten?

Now that we’ve established common symptoms to keep an eye out for, let’s backtrack and take a deeper dive into other need-to-know terminology.

Gluten, Latin for “glue,” is a protein found in wheat, barley, rye, triticale, malt, brewer’s yeast, wheat starch, and wheat derivatives like wheat berries, durum, emmer, semolina, spelt, and farina.

What is Gluten Intolerance (Non-Celiac Gluten Sensitivity)?

Non-Celiac Gluten Sensitivity (NCGS) is also commonly referred to as gluten sensitivity or gluten intolerance. If you have a gluten intolerance, you’ll feel digestive discomfort after you eat gluten or wheat because you’re sensitive to the stuff. You’ll also exhibit some of the same symptoms.

There are no medical tests for non-celiac gluten sensitivity (NCGS) and the complications aren’t yet fully understood. The majority of people who avoid gluten fall into this category.

The major difference between someone who has a gluten sensitivity and someone who is gluten intolerant is in the severity of the symptoms. It may take someone who is gluten intolerant several weeks to feel relief from symptoms once they remove gluten from their diets.

However, people with gluten sensitivity may see improvements almost immediately.

Both gluten sensitivity and intolerance aren’t well defined by the medical community. Eliminating gluten and documenting the results is the only “test” available. Researchers are currently trying to determine if gluten exposure for those with sensitivity or intolerance can lead to any long-term complications like damage to the intestinal tract or issues resulting from inflammation.

What Causes Gluten Intolerance?

No one knows what causes celiac disease and gluten intolerance. Research is ongoing to determine a genetic component and look at environmental factors.

What’s the Difference between Gluten Intolerance and a Wheat Allergy?

A wheat allergy is a disorder in which the immune system treats gluten proteins in wheat as foreign invaders and releases antibodies to defend against them. Reactions range from anaphylaxis (when your throat swells up and you can’t breathe—EpiPen needed!) to asthma when wheat is consumed. Other common symptoms include.

  • Chronic urticaria (skin rashes like hives)
  • Digestive issues (stomach cramps, nausea, vomiting, diarrhea)
  • Nasal congestion (more commonly associated with baker’s asthma)

Docs usually use skin prick tests to diagnose wheat allergies, which involve pricking wheat extracts into the skin’s surface (usually on the forearm) and observing the reaction. Blood tests looking for wheat-specific antibodies are also an option.

Although gluten is in all wheat products, people with wheat allergies can consume wheat-free foods that contain gluten (such as barley, rye, malt, and some oats). Like celiac disease, wheat allergy is a serious condition that requires strict avoidance of wheat-containing foods.

How is Gluten Intolerance Diagnosed?

If you think you or your child have undiagnosed celiac disease, you can schedule an appointment with a specialist. Doctors test for celiac disease by doing a blood panel that checks for celiac antibodies the body produces when it detects gluten.

Because of this, it’s important for people being tested for celiac disease to continue consuming gluten during the testing period. When the blood panel finds celiac antibodies, the physician often recommends doing a biopsy of the small intestine to confirm the diagnosis.

Those with celiac disease must strictly avoid all gluten to live symptom-free. Celiac is not technically a food allergy, but it’s often referred to as such to emphasize how important it is for celiac disease patients to steer clear of gluten.

However, if you are not diagnosed with Celiac Disease, there is no diagnostic test to determine if you gave a gluten intolerance or sensitivity at this time.

How is a Gluten Intolerance Different from Celiac Disease?

Celiac disease is an inherited autoimmune disease and the most severe form of gluten intolerance. People who have it have adverse reactions when they consume gluten. Their bodies create antibodies that destroy villi, which are finger-like projections in the small intestine that assist with nutrient absorption, damaging the digestive tract.

People with celiac disease experience inflammation after eating gluten, which can lead to abdominal pain and the significant digestive discomfort commonly associated with someone who is gluten intolerant. They also struggle with nutritional deficiencies.

Celiac disease is often genetic and can run in families. If you or a loved one has symptoms—or experiences a risk factor such as diabetes—get tested.

How to Treat a Gluten Intolerance

If you’re regularly experiencing any of the widespread symptoms listed above—and have not been diagnosed with celiac disease—try eliminating gluten from your diet for at least 3 weeks. You should start feeling better within the first week.

Once you’ve cut gluten from your diet for at least 3 weeks, slowly integrate it back into your life and evaluate how you feel after 3 days. If everything else in your diet has stayed the same, you should get a pretty clear feeling as to whether or not gluten is the trigger.

One thing to keep in mind: New research indicates that common upper and lower GI gluten sensitivity symptoms could also be connected to a group of poorly digested carbohydrates called FODMAPs (fermentable oligo-, di-, monosaccharides, and polyols) such as fruits, certain veggies, wheat, rye, barley, beans, lentils and some nuts (study).

If giving up gluten doesn’t help improve your digestive symptoms, you may want to consider working with an integrative nutritionist to eliminate FODMAPs temporarily to help your system heal.

Ready to Reduce Gluten in Your Diet?

If you decide to try a gluten-free diet—don’t skimp on whole grains—but do avoid eating foods containing gluten. Rely on gluten-free whole grains like millet, quinoa, amaranth, buckwheat, and teff.

Also, avoid the overly processed gluten-free snack foods and desserts. They’re often packed with added sugars, preservatives, and other inflammatory ingredients. Check out this blog post to learn more about the pros and cons of a gluten-free diet, and tips for doing it the healthy way.

This is about finding a diet that works for you, not anyone else! I encourage you to be your own health detective. Do your research, and work with integrative docs and practitioners who take a holistic approach to your well-being. If some light bulbs went off while reading this, I hope you’ll dig deeper and seek out guidance and testing, if needed. Your exploration will bring you greater well-being.

Your turn: Have you overcome health challenges with gluten or do you have questions I could cover in another blog? Share your experiences, questions, and resources in the comments so that we can swap tips and insights!

Peace & exploration,

 
Add a comment
  1. Melanie says:

    You may have just saved my pain!

  2. Deenieangel Woller says:

    My decision to try a gluten free diet is fairly recent, I made the decision without any professional input. I didn’t go completely GF, straight away it was quite an adjustment for me once I discovered the difference in how I felt on a gluten free diet vs gluten full diet so I jumped between gluten and non gluten foods(which was a bad idea) because I found the more I did that the harder it was for my body to adjust. Iv figured out that I can have gluten containing foods so long as its in moderation. If I go overboard, I get “can’t get out of bed, cant move’ type sick for atleast 2-3 days. My stomach cramps literally making it impossible for me to walk, my body aches, my head pounds, and i get really bad waves of nausea, and my body switches between severe diarrhea or severe constipation, either way though my bowl always feels uncomfortably full! Iv had tests done, that came back fine, I’ve had doctors tell me I’m just being silly, and made me feel like I’m imagining my symptoms. I don’t think its anything like cealic or IBS but I’m sure its a sensitivity or allergy to wheat or gluten. Its been quite the journey and I’m still learning what ‘moderation’ means to my body and like today, many days, or weeks are spent on the couch sick and trying to figure out what set me off. I don’t bother with the doctors anymore.

  3. Jamie says:

    I definitely have these sythoms. When I eat gluten. I also read that when you go gluten free you increase the chance for heart disease is this true?

  4. Michelle says:

    Since i am new to this what breakfast dish can you recommend that i can eat? And how about juicing. I also have Acid Reflux so this is so hard. I need help with a few morni g lunch and dinner dishes please.

    • Jamie says:

      I have bad acid reflux also! I usually have a cup of milk with a gf bagel and cream cheese. Or gf cereal. They also have pancakes that’s gf and eggs and bacon and sausage links.

  5. Michelle says:

    Thank You so much i think i am discovering this is my issue.

  6. Victoria says:

    I’ve been eating gluten when I was little, then when I came home one day from school, I had a headache and I was feeling pain in my stomach. When I was “diagnosed” with a gluten intolerance, I still kept eating gluten behind my parents backs. While that thought I was off gluten completely, I was still eating gluten and I felt no pain. I told my parents, and now they don’t know how to react. How do I know if I’m gluten free or not?

  7. Joanne says:

    I started isagenix nov 1, 2016 by nov 15th after just 2 weeks I had incredible pain relief. I did not loose weight but I did feel 98% better. I had what I thought was for 15yrs, fibromyalgia as well as bad knees with arthritis and planters faciitus and the pain was near a ten every day and I was in tears every night. Every time I eat a price of bread I have random pains all over my body again. Especially in my hands and forearms. As well as pulses of phantom pains in my feet.

  8. Jim Brandenburg says:

    Kris, Been studying health for over 6 years now and have to say that between my health Guru (Mark Duval-Whole In The Wall Herb Shop, Woodland Park, CO), Chris Zaino’s Abundant Life Chiropractic, your blog, and Dr. Lane Sebring’s Digestive Freedom, I believe my wife and I (both in our mid 70s) will overcome most, if not all, the health issues that are with us today. We have been on a Paleo Nutrition Plan (hate the word diet) for over a year now, made a few mistakes (gluten for one), but have seen really great results. So many that just mention a couple here. Body fat down from 22% to 12% for me and 38% to 29% for my wife and associated weight losses (35 pounds for me 6’5” and now 178 and 20 pounds for my wife 5’4″ and now 114). We believe we are both on the right path to really great health for anyone any age. Thanks for being part of all this.

  9. Sam says:

    You are forgetting skin! I suffered from acne (or so the derm told me) for 15 years (now 32) and I finally have figured it out myself. It’s gluten! I could never have imagined my life with out pizza or pasta (the non GF kind) – but since I’ve stopped consuming wheat/gluten – my skin has cleared, I have so much more energy, clear head, no bloating, slimmer tummy…. I truly cannot imagine going back. Only good things! ????

    • Jen Reilly, RD says:

      Hi Sam! Thank you for sharing your experience! Skin issues are less common with gluten sensitivity, and more commonly associated with celiac disease. So glad you realized the culprit to your acne and have been able to adjust your diet to help prevent it from returning! xo – Jen (Nutrition Director at KrisCarr.com)

  10. Belinda says:

    After ate I felt sleepy,tired and weak. ive felt that way after eating sweets,and over eating. But today when I ate felt sleepy, tired and weak and never felt that way,when I ate that before. I did tak3 a nap,but after that i still felt sleepy,tired,weak and nauseated. Anyways some say it’s diabetes, or stress. I don’t know. I am under alot of stress, work,business,kids,husband, school,deadlines. So I don’t know. Any help?

  11. Kerry says:

    I’m a little baffled by my symptoms if I have weetabix or a pizza I instantly feel sick, headache, stomach crap, bloated and extremely sick.
    Yet I can eat a sauce with wheat in an I takes 2 days to effect me.
    Can anyone tell me why this is please.
    Surely wheat is wheat

    • Jamie says:

      The sause probably doesn’t have wheat. It probably says may contain wheat. Meaning it was processed on equipment that wheat was processed on

  12. Tina Martinez says:

    I wanted to say, I went gluten-free on doctor’s recommendation to try it for 30 days, its been 8 days and tonight in the middle of writing a monster paper for physiology I reached for some candy without checking the contents, within half hour my stomach is bloated like crazy and I feel awful, I literally ate one handful. Is it really possible gluten can do this so fast??? And as a side-note both my SO and I noticed within 72 hours of going gf that my stomach looked flatter, crazy!

  13. Vickie says:

    A friend suggested I try going gluten free and see if I would get some relief with the problems I am having. I’ve been trying to read up on this and came across your article. Every symptom I have you have listed as a gluten sensitivity. I’m giving up gluten starting today! I’m hoping I will feel better for sure. I’m so tired and feel bad all of the time, even when I get out of bed in the morning. There is hope for me! So glad I found your article.

  14. Casey says:

    These symtoms descrbe me in almost every way. I only found out i was gluten free a month ago 6 weeks in i have lost 5kg, have more energy, no longer expelling by regurtitation or diorhea after food did find out that there was a family history. I originally didnt believe in gluten free thinking it was just a fad until i notice there was a connection with gluten in my doet and me being sick. If you have every test under the sun like i did trying to find out why i was spending hours on the loo try going gluten free i am much happier now im not using it to lose weight im doing iit because i kept throwing up on processed foods including meat. I am still getting use to going gluten free im making home made sauces and when im out i always pick a gluten free option

  15. kelly says:

    I have always gotten nauseous after eating gluten just never had a name for it! I was diagnosed with a off the charts gluten sensitivity. But now at 29 I’ve been gf for two years and now I’m coming off anxiety medication. I believe the gluten was part of the emotional turmoil and I actually feel good WITH NO MEDS! GF worked for me!

  16. I had the gluten test and was found to have a gluten problem so went gluten free about five weeks ago, since then I have developed what can only be called a feeling of arthritis over much of my body. Could this be the effect of going gluten free?. If so how long might it last?. Over some years I did have what the GP said was likely IBS which ended around four years ago when I had a twisted bowel operation.
    Regards.
    Brian Longhurst.

  17. Dianne Dawson says:

    Hi, I’ve started Gluten Free/Dairy Free 3 week ago (7/10/16) for many reasons ( I do not have celiac disease). I think I might have a gluten sensitivity. I feel bloated after meals, sometimes still wake in the morning with stomach feeling distended. I’m in my early 50’s very active, fit & teach fitness classes. I have moderate arthritis in my knees, & inflammation. I’ve been enjoying my transistion to GF, feel better, lost a few pounds. My question is I’ve had diarrhea, lose or very soft stool for the full 3 weeks. I think I’m cleansing gluten & toxins from my body as I go often, sometimes twice a day. What are your thoughts, is this normal as you transition to gluten free. I’m committed to staying gluten free but would love for my digestion to normalize.

  18. Heather says:

    I’ve been trying to be gluten free for a yr I cheat every so often. But my question is i had lumps every were but most have gone all away but not all and I’ve never heard of anyone else getting them. There like cyst but the go away and return in different spots some times

  19. Marcy Gonzales says:

    Hi , I have Hashimoto thyroidism and I am in the process of trying to go gluten-free not easy at all for me. Can you give me tips on meal plan and places to shop as well as restaurant fast food places that have gluten-free foods. Thank you

    • Sam says:

      Rice, quinoa, GF pasta and pizza, EVERYTHING else should be fresh (veggie and meat if your eat it). If your don’t eat processed things, you won’t have to “read the labels”. Make it a lifestyle change ?

    • Amanda says:

      Yes, realizing I couldn’t eat gluten has changed my lifestyle, but so worth it. It was thought I had celiac, but negative results. However, gluten challenge (eating lots of gluten) made me very ill (think projectile vomiting) and giving it up changed my life. So, taking the chance of eating it is not even an option! Sounds like a terrible idea. The biggest adjustment has been eating out and figuring out how to eat on the run. Things that have helped me is constantly preparing food at home and taking with me everywhere. And, when I’m running low on that, go to a grocery store that has good organic/alternative food section and pick up some snacks or tv dinners that have the Certified Gluten Free stamp. You will not feel good if you only eat these things for more than a day or two in a row (learned from experience haha), but it helps so much when I run out of food I’ve prepared. As for eating out — ok, Chipotle does an awesome job at preparing gluten-free and other allergen-free foods. You can get anything except for the flour tortilla. But, you need to tell them you have a gluten or wheat allergy (I just say that b/c people don’t always know what celiac or NCGS are). They will change their gloves. Don’t get any toppings they have to get with their hands like lettuce or cheese unless they have a dedicated bin for that in which they haven’t dipped hands that have touched flour. Also, Red Robin actually has a gluten-free menu and a dedicated fryer, etc., for that. Also, non-chain sit-down restaurants will, especially nice ones, will often have the knowledge and skills to prepare gluten-free without cross-contamination. Call, research online, etc. Definitely ask them when you get there and explain you have an allergy (again, people don’t always know about celiac, etc.). You pretty much can’t eat anything fried at fast food chains because they fry french fries, etc., in same vat as where they fry breaded items. Also, anything prepared can be cross-contaminated. Good luck!

  20. Liina says:

    I recently got tested for Celiac, wheat and all those protein allergies, having my health it was very plausible, that I’d have at least one of them. But all came back negative so I thought that why not eat a healthy whole wheat sandwich. Not even an hour passed before I had to run to the bathroom having immense stomach pains and diarrhea. My doctor, who is also my mum, now thinks that my whole intestine track might be so inflamed that it rejects all foods, even thought it doesn’t, just wheat and barley and things, and wants to put me on anti inflammatory meds. I’ve asked her to consult with a specialist and do some research before she makes me take anything else, I on the other hand am still going to keep my hands off gluten.

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